Preface November 2012 “How do you do it?” I looked up at the gorgeous, blonde, green-eyed woman who had just watched me use a knife and fork while having lunch at a…
When my husband and I were caught off-guard nineteen years ago when our daughter Julia was born with Down Syndrome (I was only twenty-four years old), we had a lot of, “What if’s?”…
Preface January 1980 Staring at the hand outstretched to help me up, I felt cold, clammy and humiliated. I could already feel the ice and moisture seeping through the bottom of my…
I have many things to be thankful for. For one, my family and friends. I live with my mom and dad and two sisters. I am the oldest and 19 years…
My name is Brennan and I am 5. I go to school and I have a hearing aider. My hearing aider is cool. It makes a song when I turn it on. It…
As I sat waiting in the hospital with Brennan in the OR last week, I looked around at the worried faces of the parents around me. I was not unique. We…
Preface February 10, 1994 “Maybe I’ll buy him flowers, even dinner. Do you think Michael will have dinner with me on Valentine’s Day? Of course a card, but I really need…
Preface February 2014 Four other pairs of eyes still closed, for a moment I just lay there on my bed, not wanting to wake my husband, John. Like most every morning my…
My name is Oliver Scheier, and I am 9 years old. I was born with a very rare form of Muscular Dystrophy called Rigid Spine. I am one of only 70 cases in…
I grew up in a suburb of Philadelphia and had a ” charmed”existence. Amazing parents, two brothers, beautiful house “¦the works! I have such wonderful memories of what I thought was the…
I grew up in a suburb of Philadelphia and had a “ charmed” existence. Amazing parents, two brothers, beautiful house …the works! I have such wonderful memories of what I thought was the…